Back to brains

The last few weeks have provided a welcome distraction for B and I, with the wedding and visits from family. But, like the cast of a George A. Romero film, our thoughts must eventually, inevitably, return to… braaaaaiiiiins.

We saw The German last week to discuss the results of B’s post-radiotherapy MRI. He is pleased that it only shows the surgical cavity, with no body of the tumour remaining. The edges of the cavity show something which he believes to be post-surgical scarring and post-radiotherapy activity. He cannot be 100% sure, as it’s one of those medical ‘grey areas’, so we have to take his word for it.

The images will be used as a baseline for future MRIs. After B’s chemotherapy is completed these will be carried out every 6 months. The German says, and we agree, that 3 monthly scans are too psychologically stressful, as it feels as if you have only just had one and received the results, before you are due to have another one.

The next stage for B is 6 cycles of chemotherapy – Temozolomide again, but at a higher dose than before. 5 days on, 3 weeks off x 6. So 6 months in total. This starts next week, the day after we return from our mini-honeymoon in Brighton.

B has now transitioned from private to the NHS, so he is seeing The German at the Royal Marsden cancer hospital in Sutton. I was quite impressed when we went there. Of course the building facilities don’t compare to the London Clinic, but the staff seem caring, organised and professional. We have a key worker assigned to us for any questions or concerns we have. B will only need to visit the hospital once a month for a blood test and to collect the drugs for the next cycle (which are taken in tablet form).

You won’t be surprised to hear that matrimony has not prevented me from being an insensitive cow at times. Last night I was moaning about the weather and my return to work. I said to B: ‘It’s ok for you, I have to get up at 6.30am tomorrow and go out there!’ I may as well have said ‘Yes you have a brain tumour, but at least you get to have a lie in!’ Stupid! I did immediately see the error of my ways and apologise.

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2 comments

  1. A full apology no doubt! You could never be a politician!

  2. […] pleasant. But it turns out that the ‘caring and organised’ vibe presented to us at our initial consultation in September has not stood the test of […]

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