About

A record of the sometimes grim, sometimes surreal, sometimes wryly humourous situation of having a … Boyfriend with a brain tumour. The title is my homage to The Smiths ‘Girlfriend in a coma’ (I know, I know, it’s serious).

B and I have been married since 2012 but the title is too good to change.

My aim is to make the blog informative for those who want to know what’s happening, without being relentlessly depressing. It’s a big ask but I’m rising to the challenge.

It all starts here.

7 comments

  1. Dear Jill, please tell B my best wishes from Berlin.

    1. Thanks Gerd, B says hi.

  2. Hi Jill

    I’ve just been absorbed in your blog for ages. What an amazing couple you are, and your ability to make people smile during this devastatingly difficult time is amazing.

    Jill I just wanted to let you know about http://www.brainstrust.org.uk The charity was set up when I was diagnosed with a brain tumour and we struggled to find any kind of support, specially brain tumour specific. If you want to get in touch, I can let you know about really useful resources we can pop in the post to you, or you can give me a call anytime if you want something other than B, friends, family and internet to chat to. Please feel free to email me on meg@brainstrust.org.uk
    Your B is very lucky to have you, Meg x

  3. Hi Jill 🙂 I just wanted to say your blog is fantastic to read – your optimism is inspiring. I’m a features writer and was wondering if you might be interested in sharing yours and your husband’s story in the hope of raising awareness of brain tumours, and supporting those that have been affected. I know it’s probably something you’ve not through of before, but do let me know if you want to know a bit more about it – my email is kristina@catersnews.com. Thanks so much x

  4. Hi Jill! I noticed your blog, and I greatly appreciate the stories and words of encouragement and optimism you are willing to share with others. My name is Abby and I’m currently a student at Calvin College in Grand Rapids, MI working on a project called CancerEd. My team and I are developing curriculum materials to teach children about cancer in an interactive but scientifically accurate way. We are looking to send out a survey to parents who have had cancer to better understand how they communicate with their children about cancer and we would love your help with this! If you could email me at ans29@students.calvin.edu, I would love to give you more information about the survey and about our project. Hope to hear from you soon! Thanks!

    1. Hi Abby, thanks for reading my blog. I don’t have any children so I’m not sure how much help I could be with your project!

  5. Hi Jill,

    Have you heard of Oligo Nation (http://oligonation.org/) ? It is a community-driven non-profit that aims to bring Oligo patients new treatments in the near future. We have already raised a lot of money, and funded research on immunotherapy. I am sure that you can be a valuable member of ours to beat the disease by raising funding for research!

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