As I mentioned in my last post it’s now been 5 whole years since the end of B’s treatment and, touch wood, he’s doing very well. We’ve decided to take 6 months unpaid leave from work to travel the world, or at least part of it. Over the next 6 months we’ll be visiting North […]

London has been in the grip of a heatwave this week, with yesterday the hottest June day since 1976! Yes it was 34 degrees, which is pretty hot in a city not keen on air conditioned housing or transport. My cool office has been my haven. I’ve never been happier to be there. London summer […]

Things have been burbling along since all the drama in June. B self-injected an anticoagulant daily for a month or so but now he’s just on warfarin to keep his blood at the right consistency for artery healing. He’s still having regular blood tests to monitor it. A CT scan will happen in a few […]

B spent a second day in the Friends Stroke Unit, fortunately 24 hours had passed so he was at least able to sit up – hurrah! The day was spent waiting for his echocardiagram. Time in hospital moves at a glacial pace. When you’re told that something will happen ‘soon’ that could mean anytime in […]

B was admitted to the Friends Stroke Unit at Kings College Hospital at 4am. This was because he was at risk of stroke, but he was the only person I could see who hadn’t already had one. The name of the unit seemed a bit cruel to me – these poor people either didn’t seem to have […]

On Sunday B noticed something weird – he had a bad headache, his left eyelid was a bit droopy and his left pupil was unresponsive. Here we go again, I thought. Tumour problems. On Monday I went with him to his GP who sent him to A&E. We arrived at King’s College Hospital at 4pm. This won’t […]

Last week B received a call from his brain surgeon’s PA, requesting an appointment. My initial response was alarm – one doesn’t like to hear from people like this out of the blue. After confirming that it was purely to see how he’s been faring these past 4 years, B agreed. I went along to the consultation […]

B underwent an afternoon of neuropsychological testing recently, as requested by his health insurance provider. He said he did well on some of it but other parts were awful eg. mental arithmetic. Not the simplest stuff like 18 + 42 but questions with longer steps such as: You’re in a queue with 150 people in […]

We saw The German today for B’s latest scan results. He thinks they are fine, nothing visible to worry about, no changes. The only small issue is that he couldn’t compare the scan to the one completed six months ago, as he couldn’t access it for technical reasons. Honestly, the IT in these clinics is absolutely […]

B experienced something weird whilst sitting at his desk one day last week – the right side of his face became numb, and then the same thing happened to his right thumb and right hand. He was reading the Guardian website at the time and became unable to use his mouse, so was forced to […]